Activities of daily living
Wilde MH, Brasch J, Zhang Y. A qualitative descriptive study of self-management issues in people with long-term intermittent urinary catheters. J Adv Nurs. 2011;67(6):1254-63.
The study aimed to identify and describe issues of intermittent urinary catheter users for future self-management research and/or training programmes. Six major themes were identified: knowing the body, practising intermittent catheterization, limited options in catheters and equipment, inaccessible bathrooms, hassles, and adjustment in making intermittent catheterization a part of life.
Poole JL, Nakamoto T, McNulty T, et al. Dexterity, visual perception, and activities of daily living in persons with multiple sclerosis. Occup Ther Health Care 2010; 24 (2): 159-170.
Compares dexterity, visual perception, and abilities to carry out activities of daily living (ADL) in persons with different multiple sclerosis (MS) subtypes and to determine what relationships exist between the three variables. People with more severe subtype of MS were significantly impaired compared with the least severe group for dexterity and ADL ability. Decreased dexterity was associated with needing more assistance and having more perceived difficulty with ADL.
Goverover Y, Chiaravalloti N, Gaudino-Goering E, et al. Dexterity, visual perception, and activities of daily living in persons with multiple sclerosis. Rehabil Psychol 2010; 54 (1): 60-68.
Investigates the relationship between self-awareness of functional status and performance of Instrumental Activities of Daily Living (IADL), and self-reports of quality of life (QOL) in persons with multiple sclerosis (MS). The positive association between self-awareness of functional status with IADL performance and QOL reports provides support for the role of awareness in rehabilitation
Brittle N, Brown M, Mant J, et al. Short-term effects on mobility, activities of daily living and health-related quality of life of a conductive education programme for adults with multiple sclerosis, Parkinson's disease and stroke. Clin Rehabil 2008; 22(4): 329-337.
The aim of the study was to evaluate the effect of 10 sessions of conductive education on mobility, functional independence and health-related quality of life in adults with either MS, Parkinson’s Disease or stroke. Stroke patients demonstrated statistically significant improvement in the Nottingham Extended Activities of Daily Living Index, and non-significant trends towards improved physical and mental functioning were seen across all three diagnoses
Van Der Linden FAH, D’Hooghe MB, Nagels G, et al. Proxy ratings from multiple sources: disagreement on the impact of multiple sclerosis on daily life. Eur J Neurol 2008; 15(9): 933-939.
MS patients, close relatives and healthcare providers completed the Multiple Sclerosis Impact Scale (MSIS-29) before and after a rehabilitation program. Comparison of ratings between patients and proxy respondents revealed low levels of agreement. Close relatives appeared to significantly overestimate the disease impact of MS whereas healthcare providers tended to underestimate the disease impact of MS.
Kalmar JH, Guadino EA, Moore NB, et al. The relationship between cognitive deficits and everyday functional activities in multiple sclerosis. Neuropsychology 2008; 22(4): 442-449.
The purpose of this study was to examine the role of cognitive dysfunction in the functional status of individuals with MS. Participants were 74 adults with MS and 35 healthy comparison participants who underwent neuropsychological testing and completed the Executive Functions Performance Test (EFPT) an objective measure of everyday life activities. Significant differences in EFPT performance were revealed between individuals with MS, with and without cognitive impairment, and healthy controls.
Lexell EM, Iwarsson S, Lexell J. The complexity of daily occupations in multiple sclerosis. Scand J Occup Ther 2006; 13(4): 241-8.
Study compared professionals’ assessment of self-care difficulties with patients’ perceptions, and whether these were related to sex, age, disease severity and living arrangements. No significant differences between domains were found, suggesting that individuals with MS find difficulty with occupations related to all aspects of daily life.
Hughes RB, Robinson-Whelen S, Taylor HB,et al. Stress self-management: An intervention for women with physical disabilities. Womens Health Issues 2006; 16(6): 389-99.
78 people with a range of physical disabilities were randomised to stress self-management course or the waiting list control group. At 3 month follow up, the intervention group showed improvement on stress management, pain and role limitations compared with controls.
Paltamaa J, Sarasoja T, Wikstrom J, et al. Physical functioning in multiple sclerosis: a population-based study in central Finland. J Rehabil Med 2006; 38(6):339-45.
Postal questionnaire to ascertain efficacy in self-care, mobility and domestic life. 200 respondents suggested a majority fully independent in self-care activities and domestic life, most able to walk without aid. Fatigue was the most commonly reported symptom
Navipour H, Madani H, Mohebbi MR et al. Improved fatigue in individuals with multiple sclerosis after participating in a short term self care programme. NeuroRehabilitation 2006;21(1):37-41.
34 people with MS who were able to walk without assistance and independent in ADL performed self managed graded exercise programme for 6 weeks Recommends programme as alternative to rehabilitation for non-disabled patients.
Mansson E, Lexell J. Performance of activities of daily living in multiple sclerosis. Disabil Rehabil 2004; 26(10): 576-85.
Study assessed the abilities of 44 people with MS in relation to ADL. Suggests level of disability affects someone’s ability to deal with activities of daily living, and makes recommendations about types of assessment.
Feys P, Romberg A, Ruutiainen J, Ketelaer P. Interference of upper limb tremor on daily life activities in people with multiple sclerosis. Occup Ther Health Care 2003; 17(3-4): 81-95.
Reviews the problems encountered with ADL by people with upper limb tremor and aids and strategies to counter this particular problem.
O’Hara L, Cadbury H, De SL, Ide L. Evaluation of the effectiveness of professionally guided self-care for people with multiple sclerosis living in the community: a randomised controlled trial. Clin Rehabil 2002; 61(2): 119-28.
169 people with MS took part in the trial, comprising a discussion of self-care issues and an information booklet about self-care. At follow-up, intervention group members had increased levels of independence, compared with the control group who showed lowered levels of independence.